Wednesday, July 28, 2010

Update on Addison

Addison turned 3 months on July 20th. On July 26th we took her to the pediatrician to get a weight check and they said she now weighs 10 pounds even. But then the following day we took her for a GI check-up and they said she weighs 10 pounds 13 ounces. So someone's scale is wrong and we're not really sure how much she weighs right now. :( The important part is she's gaining weight now. The GI doctor said that he's happy with her gaining weight and eating everything by mouth now so he estimates that we can have the g-tube removed in about a month. Yay! She's eating by mouth and she's even burping some on her own as well so he said "I'm proud!" (He's foreign so that came out funnier when I say it. lol) She's still on the Neocate formula for preemies and I've started her on cereal, applesauce, and even gave her some bananas yesterday. She loves all of it so far.



This is when I put her 1st pair of shoes on. She's looking at them like "what is that on my foot!" I thought it was too cute. :)


Jacob has been such a little helper thru all of this. He enjoys picking her clothes out and now that she has her first pair of shoes, he likes to put her shoes on her. He will even use her tube to burp her sometimes and likes to feed her. The boys think it's hilarious to watch her formula come up the tube when we use it. Eli still isn't too comfortable holding her so he usually doesn't pay her much attention but I do catch him talking to her and playing with her someimes. He's just still a little shy about touching her and gets ansy when she starts to cry. They fight over who gets to sit next to her in the car but as soon as she starts crying, Eli is the first one to move over and let Jacob help her while I'm driving. I want to thank everyone for all the prayers and thoughts for her thru all of this. It's been a long and emotional time but she's made it thru it (and so have I and Josh) and no one got hurt. LOL :)



We've also taken Addison to her first time at the lake and first time swimming in a pool. She loves it even tho the picture I have on here she looks pitiful. I just took that one because I thought it was cute. The others look much better. :)

This was her 1st time in the lake up in Roane County.

This was one of the 1st times in the pool. Maybe the time after I stuck her under water. :/ lol

This is just a random bath time picture I took. She loves the bath and she didn't know what to think of rubber duckie.

Tuesday, July 6, 2010

Addison's hospital visits

So we've spent a total of 3 1/2 weeks in the hospital with Addison. She's now had a head and abdomen ultrasound, upper GI test, modified barium swallow, NJ tube placed (and removed), sweat test, and a ph probe test done. She got admitted to the hospital the first time by her pediatrician. They sent us home after she gained a few ounces. When we went back to the pediatrician, she had lost again so he sent us to a GI doctor. As soon as he saw Addison he said that she was malnourished so sent us to the hospital to have an NJ tube placed. When we got to the hospital the doctor on call decided not to do that and sent us home a few days later after gaining 1 ounce (no joke.) 2 days later we had a recheck appointment with the GI doctor and he was upset they didn't place the NJ tube so we went back to the hospital. This is when they finally did the NJ tube and ended up doing a fundoplication, g-tube placement, and a pyloriplasty all in the same visit. So she's been out of the hospital for 2 weeks now and has only gained 5 ounces. They're still worried about her weight and we're going for weight check and GI appointments and also starting on a feeding pump at night starting tonight. We go back in 2 weeks to see if this has helped and find out what to do next. Secretly, I'm starting her on cereal to help. LOL. Here are some pictures from the hospital:

I think these 2 are during her first visit when they didn't do anything to her.


This is the NJ tube. It bypasses her esophagus so food can go straight to her stomach. This was to see if her refluxing in her esophagus was what was causing the problem.

This was after the G-tube was finally placed with her poor little IV in her hand.

All wrapped up like a burrito. :)

That's a picture of her G-tube. While we were in the hospital she never acted like none of this was bothering her. She did awesome!

Jacob and Eli came to see her in the hospital. Jacob missed her. He was worried about her and kept asking if she was ok.


This one is when she had the IV in her head...which we were not fond of. :(