So we've spent a total of 3 1/2 weeks in the hospital with Addison. She's now had a head and abdomen ultrasound, upper GI test, modified barium swallow, NJ tube placed (and removed), sweat test, and a ph probe test done. She got admitted to the hospital the first time by her pediatrician. They sent us home after she gained a few ounces. When we went back to the pediatrician, she had lost again so he sent us to a GI doctor. As soon as he saw Addison he said that she was malnourished so sent us to the hospital to have an NJ tube placed. When we got to the hospital the doctor on call decided not to do that and sent us home a few days later after gaining 1 ounce (no joke.) 2 days later we had a recheck appointment with the GI doctor and he was upset they didn't place the NJ tube so we went back to the hospital. This is when they finally did the NJ tube and ended up doing a fundoplication, g-tube placement, and a pyloriplasty all in the same visit. So she's been out of the hospital for 2 weeks now and has only gained 5 ounces. They're still worried about her weight and we're going for weight check and GI appointments and also starting on a feeding pump at night starting tonight. We go back in 2 weeks to see if this has helped and find out what to do next. Secretly, I'm starting her on cereal to help. LOL. Here are some pictures from the hospital:
I think these 2 are during her first visit when they didn't do anything to her.
This is the NJ tube. It bypasses her esophagus so food can go straight to her stomach. This was to see if her refluxing in her esophagus was what was causing the problem.
This was after the G-tube was finally placed with her poor little IV in her hand.
All wrapped up like a burrito. :)
That's a picture of her G-tube. While we were in the hospital she never acted like none of this was bothering her. She did awesome!
Jacob and Eli came to see her in the hospital. Jacob missed her. He was worried about her and kept asking if she was ok.
This one is when she had the IV in her head...which we were not fond of. :(
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